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Female reproductive anatomy
Female reproductive anatomy


Intersex

Alternative Names:
Disorders of sex development; DSDs; Pseudohermaphroditism; Hermaphroditism; Hermaphrodite

Treatment:

Ideally, a team of healthcare professionals with expertise in intersex should work together to understand and treat the child with intersex - and to understand, counsel, and support the entire family.

Parents should understand controversies and changes in treating intersex in recent years. In the past, the prevailing opinion was that it was generally best to assign a gender as quickly as possible, often based on the external genitals rather than the chromosomal gender, and to instruct the parents to have no ambiguity in their minds as to the gender of the child. Prompt surgery was often recommended.  Ovarian or testicular tissue from the other gender would be removed. In general, it was considered easier to reconstruct female genitalia than functioning male genitalia, so if the 'correct' choice was not clear, the child was often assigned to be a girl.

More recently, the opinion of many experts has shifted. Greater respect for the complexities of female sexual functioning has led them to conclude that suboptimal female genitalia may not be inherently better than suboptimal male genitalia, even if the reconstruction is 'easier'. In addition, other factors may be more important in gender satisfaction than functioning external genitals. Chromosomal, neural, hormonal, psychological, and behavioral factors can all  influence gender identity.

Many experts now urge delaying definitive surgery for as long as healthy, and ideally involving the child in the gender decision.

Clearly, intersex is a complex issue, and its treatment has short and long-term consequences. The best answer will depend on many factors, including the specific cause of the intersex. It is best to take the time to understand the issues before rushing into a decision. An intersex support group may help acquaint families with the latest research, and may provide a community of other families, children, and adult individuals who have faced the same issues.



Support Groups:

Support Groups are very important for intersex families. Some are general support groups. These groups may express quite different views than each other. There are also support groups for many of the specific types of disorders of sex development.

General:

  • Intersex Society of North America -- www.isna.org
  • Intersex Support Group International (ISGA)
  • Ambiguous Genitalia Support Network Bodies Like Ours - www.bodieslikeours.org
  • Hermaphrodite Education and Listening Post (H.E.L.P.)

Specific:



Expectations (prognosis):

Please see information on the individual conditions. The prognosis depends on the specific cause of intersex. With understanding, support, and appropriate treatment, overall outlook is excellent.



Calling your health care provider:

If you notice that your child has unusual  genitalia or sexual development, discuss this with your health care provider.




Review Date: 2/13/2006
Reviewed By: Alan Greene, MD, Chief Medical Officer, A.D.A.M., Inc.

The information provided herein should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Call 911 for all medical emergencies. Links to other sites are provided for information only -- they do not constitute endorsements of those other sites. Copyright 2004 A.D.A.M., Inc. Any duplication or distribution of the information contained herein is strictly prohibited.

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