Pediatric heart transplant process

You can call (352) 265-0751 to make a referral to the heart transplant program at the Shands Transplant Center at the University of Florida.

Pediatric heart transplantation is safe and can even be performed on infants with otherwise lethal cardiac conditions. Most patients are able to recover and return to society in a productive manner.

Congenital heart defects that could be considered for transplantation include:

Hypoplastic left heart syndrome
Single ventricle with hypoplasia of the aortic outflow tract
Atrioventricular canal defect
Truncus arteriosus

Hypoplastic left heart syndrome accounts for one-to-two percent of all congenital heart disease and is the most common cause of death from a cardiac defect during the first month of life. These infants can benefit from an infant heart transplant program.

Transplantation is the only treatment that offers hope to infants with irreversible cardiomyopathies. Currently, the indication for the vast majority of pediatric heart recipients over the age of one year is cardiomyopathy.

Infant transplant patients are evaluated in the neonatal intensive care unit or pediatric intensive care unit at Shands at the University of Florida. Once accepted for transplantation, the infant remains at Shands at UF until transplantation. Infants are at significant risk of rejection, infection and developing accelerated coronary artery disease after heart transplantation.

Infants receive endomyocardial biopsies at regular intervals to check for rejection. Older children and adults receive endomyocardial biopsies more frequently than infants.

Families must stay within one hour's driving distance from the hospital for the first two-to-four months following transplantation due to the frequency and complexity of outpatient visits.

Statistics
Success rate and various other statistics regarding the Shands Transplant Center at UF are available from the Scientific Registry of Transplant Recipients at ustransplant.org.

Related Links
CHF Patients

Transplant Navigation

Heart and Lung Transplant

Heart Transplant Navigation

Pediatric heart transplant

Process

Programs

Recovery

Make an Appointment

To make an appointment or find out more information about transplant services offered at Shands at the University of Florida, please call 352.265.8000 or toll-free 1.800.749.7424

You may also email our Consultation Center (consult@shands.ufl.edu) or use our secure online form.